Happy 2nd Birthday to me š„³ The Autologous Hematopoietic Stem Cell Transplant was done February 17, 2022 @hsctmexico (Clinica Ruiz, Monterrey). It was the single worst medical treatment Iāve gone through in my life (31 days). But itās over š„µ
HSCT is not to be feared though, MS is the greater beast.
Nine months later I went on to have mesenchymal stem cell therapy in my spine @hopebio_org (Hope Biosciences, Sugar Land, TX). Very painful, but excellent results.
The subsequent months and now two years of recovery have been insanely difficult, yet have brought very unexpected miracles to my body. My day to day is full of long standing disability struggles, but itās black and white better from before. I am holding strong with my improvements. However, I am on a monthly drug (Ofatamumab) to try to control the little relapses that like to torture me.
True to Fernieās words, I learned to ārunā again. (OK only for brief moments š¤£). But stillā¦.š¤©
I donāt feel like my body is trying to kill me anymore. Not driving for 8 years, and now I canā¦..crazy awesome. I canāt say Iāve got my life back (at all), but Iāve found a little corner in life that Iām trying to blossom. Horses š š
Iām forever indebted to the many people, with so much love, who donated to help me get HSCT; thank you ā„ļø. I love you.
Iām doing my best, whatever that is. If thereās an opportunity that I can reach, I grab it and LIVE BIG. Most importantly, if you love someone, say it. You never know what will happen tomorrow šø
#HSCT
#MSCās
#hsctmexico
#HSCTforms
#DisabledLife
#thisisms
#StrugglingMentally
ID: there are over 60 different photos that document the ups and downs of the last two years. The moments where I could get into the outdoors, were always at the help of friends. Iām so grateful for you.
Incredible Jenny – your courage, perseverance and incredibly positive attitude is so admirable. I’m thrilled to see the great results of this difficult journey!!! Run, Jenny, Run!!
Thanks Janet! Itās been a slog interspersed with brilliant moments ā„ļø I havenāt tried to run again since that day, but I had to yesterday when an emergency happened. I was pleased that I didnāt fall when I tried to ārunā š
To Jenny, my daughter:
I have watched you overcome one challenge after another and Iāve been amazed at your determination and strength in overcoming these obstacles in your life. And there have been so many. You are incredible and Iām in awe. Enjoy every minute my love! Youāve earned it.
Thanks for all your support throughout it! xoxo
Hi Jenny!
You have come such a long way and I know you definitely still have struggles but seeing your a few years ago not even able to walk two steps without holding onto the wall or walker and other things (we discussed these when I was at your place… I won’t mention it here), you have come such a LOOOONG way!!!
It is so great to see you walking, driving, riding a HORSE and going for your dreams of being a paraolympic equesterian is such an inspiration.
Keep on killing it girl! And soooooo many hugs to you (when you are feeling 100% and triple hugs when things are not going 100%).
XOX
Thanks lovely. Your support and empathy through these last many years have been invaluable Mich ā„ļøā„ļøā„ļø. Love you š