I had another night of unexpected sweats (gah, again!), constant disruptions, etc. I guess I have to get used to the idea them coming and going at whim.
I realized that eight years ago today I was admitted to the ER and later hospitalized as a result of my MS. I wasn’t doing well at the time of diagnosis, only a month earlier, but this experience took ‘the cake’ on my introduction to life with this disease.
This past summer (2021) I wrote an article about that day called “The Day the Poltergeist Moved In, Set up Shop and Wielded a Nightmare” for multipleslcerosis.net, if anyone would like to read it (please disregard if you have already). The Part II represented the following seven months after February 24, 2014. I’ll also post them to my other blog section at some point.
Ciproflaxin 500mg (anti-biotic) x 2/day
Acyclovir 400mg (anti-viral)
Itraconazole 100mg (anti-fungal)
Fenazopiridina 40mg x 3/day (up 3x/day for bladder pain)
Filgrastim shot: 300 micro units/daily
Today, I was about the same yesterday, both physically and emotionally. I wasn’t coping with the pain in my head, my own symptoms and the issues surrounding my bladder. Dr. Alex said they’d cover their bases with a few more tests tomorrow morning to ensure I’m OK. They are doing everything they can for me.
My mother reported to me last night that she was astounded I still had little Lambie, and said she was the one who took off his eyes (not me) as she worried I would claw them off and pop them in my mouth. Kinda like I do now as an adult with my coveted candies ;-). It’s strange how our memories of childhood can be slightly off.
The cleaning lady saw me crying silently on the lounger and reached out in compassion with a tiny gesture as though to touch my forehead. No one is supposed to touch me as I have no immunity (neutropenic); the gesture didn’t escape me on how kind everyone is here. And so thoughtful. I feel like they have all gone above and beyond for me.
Today was a tough day and I just had to live through it. Every minute seemed like hours to me. I got into bed early and tried to dose myself up adequately to sleep.
Tomorrow should be better, right?!