HSCT Journals

February 24th: +7 Transplant

by | Feb 25, 2022 | Blog Posts, HSCT Journals | 4 comments

I had another night of unexpected sweats (gah, again!), constant disruptions, etc. I guess I have to get used to the idea them coming and going at whim.

I realized that eight years ago today I was admitted to the ER and later hospitalized as a result of my MS. I wasn’t doing well at the time of diagnosis, only a month earlier, but this experience took ‘the cake’ on my introduction to life with this disease.

This past summer (2021) I wrote an article about that day called “The Day the Poltergeist Moved In, Set up Shop and Wielded a Nightmare” for multipleslcerosis.net, if anyone would like to read it (please disregard if you have already). The Part II represented the following seven months after February 24, 2014. I’ll also post them to my other blog section at some point.

Part I: https://multiplesclerosis.net/living-with-ms/quick-onset
Part II: https://multiplesclerosis.net/living-with-ms/coping-diagnosis

8am meds:

Dexamethasone .5mg
Pantoprazole 40mg
Ciproflaxin 500mg (anti-biotic) x 2/day
Acyclovir 400mg (anti-viral)
Itraconazole 100mg (anti-fungal)
Fenazopiridina 40mg x 3/day (up 3x/day for bladder pain)

12:30pm:

Filgrastim shot: 300 micro units/daily

Today, I was about the same yesterday, both physically and emotionally. I wasn’t coping with the pain in my head, my own symptoms and the issues surrounding my bladder. Dr. Alex said they’d cover their bases with a few more tests tomorrow morning to ensure I’m OK. They are doing everything they can for me.

My mother reported to me last night that she was astounded I still had little Lambie, and said she was the one who took off his eyes (not me) as she worried I would claw them off and pop them in my mouth. Kinda like I do now as an adult with my coveted candies ;-). It’s strange how our memories of childhood can be slightly off.

The cleaning lady saw me crying silently on the lounger and reached out in compassion with a tiny gesture as though to touch my forehead. No one is supposed to touch me as I have no immunity (neutropenic); the gesture didn’t escape me on how kind everyone is here. And so thoughtful. I feel like they have all gone above and beyond for me.

Today was a tough day and I just had to live through it. Every minute seemed like hours to me. I got into bed early and tried to dose myself up adequately to sleep.

Tomorrow should be better, right?!

4 Comments

  1. Sandra

    Tomorrow will be a better day my beautiful, brave sweet friend. Thinking of you so much and hoping you have a better night and day ahead. Sending love, hugs, prayers and positive healing vibes. ❤️

    Reply
  2. NADINE S

    Hi Jenny,

    I don’t remember much – I’m not even sure of my HSCT birthday. I think it was March 13, 2013?! But I do know I was crying too. I had a totally embarrassing incident which was probably not uncommon but I remember just being in bed crying. No one in the hospital made me feel bad – everyone was great but I couldn’t hold it together. I was miserable. This isn’t meant to make you feel better or anything – just that it’s an intense procedure that would make anyone cry!! Seriously – how many who have had HSCT ended up crying during the procedure?! 😉

    ~nadine

    Reply
  3. Mich

    I hope it’s a better night and day tomorrow 🙏🏽🙏🏽🙏🏽🙏🏽🤞🏽🤞🏽💕💕 sending healing vibes 😘

    Reply
  4. Chantel

    The thought of your mom removing Lambie’s eyes so you wouldn’t treat them as candies made me laugh. Thinking of you! Hope today is a better day. Sending you lots of love, positive vibes, virtual hugs and digital roses! 🌹🌹🌹❤️😘

    Reply

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