I’m OK today and the sun is out again. Yah!
Ciproflaxin 500mg (anti-biotic)
Acyclovir 400mg (anti-viral)
Itraconazole 100mg (anti-fungal)
After too many requests, I resorted on Tuesday to sending a very assertive email to the head of Clinica Ruiz in Puebla to force the set up of a follow-up Zoom consult with the neurologist. It finally took place this morning. *Big sigh* I am beyond, BEYOND exhausted from years of advocating for myself when something should just be done.
Anyways, a quick recap. Last week the original consult was not thorough, and since it was cut short she said we could talk after she looked at my MRIs from Canada/Mexico. I wanted her valued opinion overall on my case history/prognosis, and baseline EDSS score which is the measurement of how advanced your MS is.
After today’s consult, I’m fully satisfied and have new information to consider both good and bad. She thinks the HSCT will halt inflammation in my brain/spinal cord, maybe shrink the current lesions, and gave me my EDSS score. Last summer it was 7.5 even though I’ve never been able to ‘wheel self’ (as defined in the EDSS scale). Very recently my mobility has increased, and she puts it at 6.5 maximum. This is excellent.
Lastly, she suggested I see a surgeon regarding the multiple disc compressions and protrusions in my C-spine. Obviously, this is exacerbating my situation and was worse from last June’s MRI. These issues are a result of many years of amazing sports/accidents, whiplash injuries, etc. I’m not too fussed about it, and believe me I have no regrets on the thrills and adventures I’ve had. Onward…
I decided today was the day (not Friday) to get rid of my hair before it really begins to fall out. That way when it’s taken off, it can be pulled into nice solid in pigtails for it to be cut off, which is the way they want it for donating. I don’t have any tears to shed over losing my hair, and please peeps, no need to say or think ‘Jenny, it grows back’. I know it will. From previous significant hair loss (thanks Alemtuzumab), I know for me it takes years before good, quality hair grows back and to a length I would appreciate. I can’t even think that far.
I started having pain in my bladder and while going pee this morning. Fernie called Dr. Elias who is my overseeing physician and I’ve been given a drug called Fenazopiridina (50mg) to take every 8 hours to quell the pain. It’s a lateral drug to Phenazopyridine (Pyridium). It really helps.
Mid-afternoon I went out to the parking lot to chat with Elvia for a while in the sun. She’s so sweet.
Strips of hair ready to donate