I felt I needed to preface this post as I am getting comments that some of my information may be too TMI for people.
Let me be clear: this blog is for pwMS (people with MS) who are considering HSCT. I think what ‘mainstreamers’ don’t realize is that these TMI things, I am sharing, are part of many of our daily lives, including mine. In fact, some have it far worse than I do. It has been an extremely difficult transition for me to be transparent about all this as I’m a very private person. With that note, I carry on….
Slept the best I’d had in a long while with no nausea. I stayed hydrated as per protocol, yet was able to get to sleep between bathroom breaks. Even with a longer sleep I still woke with that severe fatigue like yesterday, but I wanted to persevere for my 9:30am chemo plan.
Ciproflaxin 500mg (anti-biotic) x 2/day
Acyclovir 400mg (anti-viral)
Itraconazole 100mg (anti-fungal)
Fenazopiridina 40mg x 3/day
One hour before infusion:
Oral Aprepitant 80 mg
Once again, I was delighted to simply have the PICC line ready to be hooked up so easily for my fourth dose of poison.
Ondanestron 8mg (anti-nausea)
Dexamethasone 4mg (steroid)
Aprepitant 40mg (2nd dose, as mentioned above, used as anti-nausea/prevent vomiting)
Pantoprazole 40mg (PPI, similar class of Omaprozole)
Cyclophosphamide 1900mg (chemotherapy dosage decreased today 40mg/kg body weight)
MESNA 2000mg (used to prevent hemorrhagic cystitis/bleeding in the bladder from chemo)
Ondansetron 8mg (as above)
Before getting home my bowel started going nuts, and diarrhea began with a vengeance. To make mattes worse, I’d been pretty blocked up the last five days (even with my very aggressive bowel routine). I spent perhaps 10 hours dealing with that, then like a light switch, it turned off at about 10:30pm. Almost immediately after, the bladder switch was turned on and it went bonkers. What a night it was. Luckily, we have the option to request having a commode by the bed which I found very helpful 😉
Meds before bed:
Aprepitant 80 mg (2nd dose, as above used as anti-nausea/prevent vomiting)