Four years ago, I had HSCT for MS. I was told more than once that it wouldn’t work.
Four years later, I’m still holding my own.
Life is very clearly divided into pre and post-HSCT. Black and white. It hasn’t been perfect — so many ups/downs — but the improvements I gained are still here.
Horses have become part of my routine, more than a hobby. Riding gives me full-body neurological stimulation and constant balance work. What it doesn’t give me in cardio, it makes up for in strength, coordination, and core stability. And there’s the social aspect — time with horses and actual humans. That combination is more than most gym programs ever could.
Highlights of the last year: first Christmas in 24 years with my family (wow!), indoor sky diving with my nephew, and many days training and competing (para) dressage.
Driving again has probably been one of the biggest lifestyle shifts. I don’t exactly live a wild, glamorous life, but being able to get myself somewhere — anywhere — beats feeling like being a prisoner at home. OMG a breath of independence…
I still use a mobility scooter. Heat hits me harder every year, and no amount of ice vests or cooling packs handles the high temps. What else can be done? Just get on with it.
To the parts of the healthcare industry that said this treatment wouldn’t work — I’m walking proof you were wrong. Hopefully that statement has a long shelf life.
And to the people — known and unknown — who put kindness, support, and resources into my health: thank you. You know who you are. You helped make these four years possible 🌸
Anyway. Happy stem cell birthday to me 🍾
Chocolate (or candies) can be shipped at your convenience.
Jenny ❤️
Jenny! So good to read this upbeat update about your health. Four years already, wow. Here’s hoping for four more years of status quo functioning 🙂
All I can say is Thank God for the Blessing. Praise his name, You look wonderful.
So wonderful to see your progress. So much hard work and perseverance on your part!
Thank you so much for the update. I’ve been wondering where you are in your MS journey. So happy to learn that you are holding your own and finding joy! Peace!
What?? 4 years? That’s unbelievable. What a transformation in your life. It has been an honor to have had a front row seat to watch all the wonderful things you’ve done since. Congrats and happy HSCT bday.
I truly LOVE THIS!! Yay stem cell transplant and YAAAAY YOU!!!!!
We are so lucky to have you part of our lives
🥂🍾
” Just get on with it.” This statement made me chuckle and smile. I love this attitude and this season of life. So very happy for you!
And cardio is highly overrated; my neurologist tells me that it won’t improve balance, so maybe you’re on the better path anyways?
Ever seen anyone look like they were having fun while running? If you did, it certainly wasn’t me. 😉
Fabulous news Jenny!
You are awesome…
Aren’t we lucky?! 😉
I’m over 13 years since HSCT.
Making more art than I ever have though still not enough at all…
Jenny, I miss you Terribly! Your joy and happiness is simply who you are! Happy HSCT Birthday ❤️ and enjoy the Great Freedom that HSCT has made possible for you! It was not easy, but your bravery and determination guided you through the difficult misery of HSCT and your confidence made it successful! Thank you for being The Greatest Inspiration for everyone that needs HSCT. I know that your positive attitude and your Joyful life motivates someone new Every Single Day!
Great Thanks Jenny,
With Love from Patty
What a wonderful perspective. Yay to driving and walking and horses. Freedom to move is really what it’s about! xo
CONGRATULATIONS!!!!! We are so happy to hear that you are doing great and going strong!