There are less than two weeks left until I depart for Monterrey, MX. While I’ve been organized for this trip/treatment for several months now, I still feel like there’s endless stuff to organize. Gah!
I left Canada in late November and have been in the USA for the last two months. No peeps, I am not in Maui so don’t be jealous. It was quite the load of decisions to make on what to pack, how much of this or that, along with compiling all my meds, supplements, etc., for three months. I was going to be in cold weather for two months, then in MX it will be warmer, meaning I had to plan for two climates. I already feel terrible for the porters who help me as I have so much luggage in tow.
To supplement my vitamin D these last few months, I joined a local gym to access their tanning beds (@$23/month, how could I go wrong at that rate?!). The gym had this intense light therapy machine that felt so soothing for my pain. The machine also had this really cool vibrating base so I’d stand for a few minutes, close my eyes with my hands against the sides (for balance) as an exercise for my brain to redevelop proproception. It was a challenging one!
All this aside, I think I’m having a mild disease relapse as I’ve developed severe itching on various (and odd) parts of my body. Itchiness is a constant symptom of mine, but this is a new level of intensity and the rashes are growing in size every day. It’s driving me crazy. I have oral prednisone with me so likely I will start that tomorrow for some relief.
I have to admit I’m nervous about HSCT. I love the thrill of rollercoasters, but this a different kind of rollercoaster. One that entails kind of trying to kill me, then bringing me back to life again. OK, that’s rather dramatic, but you get the idea 😉
If I haven’t mentioned before I hate nausea/puking and any type of IV. I ask for the smallest guage IV catheter (needle) as my veins shrivel up at the sight of them. Yup I’m bona fide big baby! This is some serious chemo I’m going to get, so mentally I need to get my head around that. Or maybe I don’t, I still have time to figure that one out.
Overall, I’m excited. And eternally grateful to the heaps of people who have – both emotionally and financially – supported me every step of the way to have this treatment. The outpouring of love from everyone has humbled me beyond words. I’m truly blessed.