HSCT Journals

Walking Video Three Months Post HSCT

by | May 15, 2022 | Blog Posts, HSCT Journals | 11 comments

I have been told to not expect any improvement from HSCT, and the prognosis is to simply stabilize disease degeneration. I have been reminded to be careful of expecting any sustained improvements as they may disappear in the future, and may/may not come back.

Well so far, my improvements have been so unreal that I am pinching myself to make sure it’s real. I’m celebrating whatever I can, when I have it!

I have had a number of people ask me, ‘you can walk like that, so why are in a wheelchair?’ ‘Aren’t you better now? You look ‘normal’.

The answer is, I look normal in a wheelchair, and no I’m not all better, and yes I still need an electric mobility device as my body does what it can, then that’s it.

My disabilities are primarily from the neck down and ENDURANCE in origin. That meaning, I can move body parts for a matter of seconds or perhaps minutes, then I hit a wall. That wall is a neurological disintegration and an explosion of these hideous sensations in my body. I can’t push it. My hopes are to increase the duration of my: standing, walking and any functionality with my hands.

I’m excited to share my walking video of 50 steps outside, with no walker, and is the first time I’ve tried walking outside since I last posted one two weeks ago.

PS: I meant to say this wig IS uncomfortable 🙂

Click here for video

11 Comments

  1. NADINE

    Hi Jenny!

    Your walking is so great! Isn’t it amazing how quickly some things can feel better after HSCT?
    My walking is slow and I look down a lot because I’m in a small city with stuff/garbage on the sidewalks I could trip over but most day, except when it’s hot, like today, I walk almost 30 minutes.
    Never would be happening if not for HSCT. You are doing awesome!

    ~nadine

    Reply
    • Jenny Angus

      Thanks Nadine. My gosh yes I would expect you to always have your head down there! Amazing you’re walking for 30 minutes, wow ♥️

      Reply
    • Nola

      Freak out dances are the best. Well done

      Reply
  2. Debs

    Such great news! Life-changing news! I couldn’t be happier for you!! Hugs & Love! Debs

    Reply
    • Jenny Angus

      Thank you!! Lots love ❤️ 😘

      Reply
  3. Cheryl

    Wow what great progress and so fun to see you making it to 50 steps like a runway model in that cute wig and hat.
    I’m so happy for you, Jenny and now have a new dance, the happy dance…a bit like a penguin!

    Reply
    • Jenny Angus

      Thanks Cheryl! 💜

      Reply
  4. Zeta

    Jenny this is phenomenal! And you took this after doing you’re errands 😍 I’m so happy for you 🥰💓🌸

    Reply
    • Jenny Angus

      Thanks Z ♥️!

      Reply
  5. Pat H

    That is amazing Jenny!!! The joy on your face says it all!!! Hugs to you!!

    Reply
    • Jenny Angus

      Thanks so much Pat! Hugs to you too! ♥️

      Reply

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