HSCT Journals
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Preparing for MRI Trip: June 8th
I’ve spent the last month stressing, thinking, wondering who might be able to take me to the city for my yearly MRI yesterday. Luckily a week ago a kind friend offered to take me (I almost cried in relief). She had a few errands herself so it was a win-win. It’s a 2.5...
Written by Jenny Angus
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February 22/23: +5/+6 Transplant
I have combined these days to catch up. Tuesday was largely uneventful with the exception that it was ‘22022022’. It took Fernie pointing that out for me to rise out of my dazed state to recognize the symbolism. Cool. I had a bit of a break in the intensity of all my...
February 21: +4 Transplant
OK, here’s my update, albeit two days behind and late in the day posting. I had to wait today for pain control to kick in for a post-spinal tap like crushing headache that hit me this morning. ___ Unfortunately, I’m not sleeping much as a side effect of the...
February 20 (Sunday): +3 Transplant
This was my first night with no night sweats. What an unbelievable relief and I’m happy for the improvement. It was a much more peaceful sleep, only rising every two hours for bathroom/meds/crash/etc. 8am meds: Dexamethasone .5mg Pantoprazole 40mg Ciproflaxin 500mg...
Jenny when do you go?
Hi Janet, I leave Jan 30th.
Hi Jenny, i live in Germany and the neuros tell me I am too old for HSCT st 54 and my MS is too far gone.. The German MS society is also useless. So is My husband.
How did you manage to get to Mexico
All the best, Bernadette
Hi Bernadette, So sorry to hear of your situ. I think the first step is to contact Clinica Ruiz and begin the process to see if it’s something you want to pursue. It’s your choice and your life. When you decide, then next step is to figure out how to pay for it, and then physically get there. Here’s a link to an article I wrote on my decision making process. I hope you find relief. Kindest regards, Jenny
https://multiplesclerosis.net/living-with-ms/hsct-decision