HSCT Journals

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Walking Video Three Months Post HSCT

Walking Video Three Months Post HSCT

I have been told to not expect any improvement from HSCT, and the prognosis is to simply stabilize disease degeneration. I have been reminded to be careful of expecting any sustained improvements as they may disappear in the future, and may/may not come back. Well so...

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Written by Jenny Angus

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February 19 (Saturday):  +2 Transplant

February 19 (Saturday): +2 Transplant

My days are blurring one into the next. I had to look at the calendar to know I’ve been here three weeks now. I realize I am two behind in posting my blogs from my actual real time, making hard to follow. I hope to catch up this week…. As for last night, it was...

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February 18th:  +1 Transplant

February 18th: +1 Transplant

I had a much better sleep than the day before (no rocket launchers, haha!). I felt blessed with no nausea once again. I still have a few days to get through while the Cyclosphomide is working it’s ‘magic’ in my body. You have to know my fingers/toes are triple crossed...

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February 17th:  Stem Cell Transplant (New Birthday)

February 17th: Stem Cell Transplant (New Birthday)

What an awful night. The bladder urgency was like a rocket ship launching me out of bed. I had seconds to make it to the commode beside me. Then I’d crash back to bed, but not before switching out my drenched PJ’s from the intense night sweats. I'm developing a...

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4 Comments

  1. Janet B

    Jenny when do you go?

    Reply
    • Jenny Angus

      Hi Janet, I leave Jan 30th.

      Reply
  2. Bernadette

    Hi Jenny, i live in Germany and the neuros tell me I am too old for HSCT st 54 and my MS is too far gone.. The German MS society is also useless. So is My husband.
    How did you manage to get to Mexico
    All the best, Bernadette

    Reply
    • Jenny Angus

      Hi Bernadette, So sorry to hear of your situ. I think the first step is to contact Clinica Ruiz and begin the process to see if it’s something you want to pursue. It’s your choice and your life. When you decide, then next step is to figure out how to pay for it, and then physically get there. Here’s a link to an article I wrote on my decision making process. I hope you find relief. Kindest regards, Jenny

      https://multiplesclerosis.net/living-with-ms/hsct-decision

      Reply

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