HSCT Journals
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Two Months+ Post HSCT Update
So much has happened, both fantastic and a bit not so good. When that happens I don't always know how to assimilate it all, and thus, stay silent. Here's my update.... First, for the awesome part. Over a week ago I had an appointment with my neurologist. Luckily, I...
Written by Jenny Angus
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February 14th
I barely slept again, but had to get a move on for the PICC placement and the potential of being out for 14 hours. We were ready at 7am for the pick up with a snack bag, two personal backpacks, blanket, winter jacket (it is quite cold in the aphaeresis room), wool hat...
February 13th
Every day brings something so new and unexpected, it’s almost like a crime detective show where we, as viewers, never know which way things will turn out. Except in my case there is no actual crime, only me being the puzzle to solve. 8am meds: Dexamethasone 4mg...
February 12th (Saturday)
I barely slept last night from my sweats, excessive urination, body feeling that mind boggling inner fire rage, numb frostbitten toes and feet, explosive electricity, some minor bone pain, and itching of course, etc. I thought it was going to be a potentially large...
Jenny when do you go?
Hi Janet, I leave Jan 30th.
Hi Jenny, i live in Germany and the neuros tell me I am too old for HSCT st 54 and my MS is too far gone.. The German MS society is also useless. So is My husband.
How did you manage to get to Mexico
All the best, Bernadette
Hi Bernadette, So sorry to hear of your situ. I think the first step is to contact Clinica Ruiz and begin the process to see if it’s something you want to pursue. It’s your choice and your life. When you decide, then next step is to figure out how to pay for it, and then physically get there. Here’s a link to an article I wrote on my decision making process. I hope you find relief. Kindest regards, Jenny
https://multiplesclerosis.net/living-with-ms/hsct-decision