HSCT Journals
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Two Months+ Post HSCT Update
So much has happened, both fantastic and a bit not so good. When that happens I don't always know how to assimilate it all, and thus, stay silent. Here's my update.... First, for the awesome part. Over a week ago I had an appointment with my neurologist. Luckily, I...
Written by Jenny Angus
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February 12th (Saturday)
I barely slept last night from my sweats, excessive urination, body feeling that mind boggling inner fire rage, numb frostbitten toes and feet, explosive electricity, some minor bone pain, and itching of course, etc. I thought it was going to be a potentially large...
February 11th (Friday)
Things are ramping up in several directions right now. OK, to start I woke up with a decent sized mouth ulcer and feel a few others brewing. This is a side effect of the Cyclophosphamide. My whole mouth is burning so my spicy salsa eating days may have to be put on...
February 10th
I’m OK today and the sun is out again. Yah! 8am medications: Pantoprazole 40mg Ciproflaxin 500mg (anti-biotic) Acyclovir 400mg (anti-viral) Itraconazole 100mg (anti-fungal) After too many requests, I resorted on Tuesday to sending a very assertive email to the head of...
Jenny when do you go?
Hi Janet, I leave Jan 30th.
Hi Jenny, i live in Germany and the neuros tell me I am too old for HSCT st 54 and my MS is too far gone.. The German MS society is also useless. So is My husband.
How did you manage to get to Mexico
All the best, Bernadette
Hi Bernadette, So sorry to hear of your situ. I think the first step is to contact Clinica Ruiz and begin the process to see if it’s something you want to pursue. It’s your choice and your life. When you decide, then next step is to figure out how to pay for it, and then physically get there. Here’s a link to an article I wrote on my decision making process. I hope you find relief. Kindest regards, Jenny
https://multiplesclerosis.net/living-with-ms/hsct-decision