HSCT Journals
My Newest Blog Post
Preparing for MRI Trip: June 8th
I’ve spent the last month stressing, thinking, wondering who might be able to take me to the city for my yearly MRI yesterday. Luckily a week ago a kind friend offered to take me (I almost cried in relief). She had a few errands herself so it was a win-win. It’s a 2.5...
Written by Jenny Angus
Subscribe to my blog
More From This Category
March 1st Part I of II: Travel Day & Goodbye to Dr. Alex
Tuesday the 1st: huge day! I was suffering immensely from the infusion yesterday. To sum it up, I had little sleep last night, crushing headache, unbearable discomfort/extreme distention in my abdomen of fluid retention, same bladder issues, heart palpitations, body...
February 26: (Saturday) +9
I woke up feeling blessed that those nightmarish sweats left me alone last night. I slept a little longer too. I had my blood draw this morning so we were on pins and needles waiting for the results, and if my neutrophils were high enough then I could go for my...
February 25: 8+ Transplant
I had another night of drama with these night sweats. I think they are trying to UNHINGE me. If only I had a 'cap' to fire one in the butt of that 'night sweat commander'....! That familiar crashing headache, intense bladder pain and a larger than usual fatigue was...
Jenny when do you go?
Hi Janet, I leave Jan 30th.
Hi Jenny, i live in Germany and the neuros tell me I am too old for HSCT st 54 and my MS is too far gone.. The German MS society is also useless. So is My husband.
How did you manage to get to Mexico
All the best, Bernadette
Hi Bernadette, So sorry to hear of your situ. I think the first step is to contact Clinica Ruiz and begin the process to see if it’s something you want to pursue. It’s your choice and your life. When you decide, then next step is to figure out how to pay for it, and then physically get there. Here’s a link to an article I wrote on my decision making process. I hope you find relief. Kindest regards, Jenny
https://multiplesclerosis.net/living-with-ms/hsct-decision