HSCT Journals
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Walking Video 4 Months Post HSCT and MRI Update, etc…
This past week has been really tough for me. Most of it stemmed from the impassable walls I slam up against as a disabled person trying to do something to help myself, or for myself. We’ve all seen those videos where cars are being tested, sent at full speed crashing...
Written by Jenny Angus
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February 26: (Saturday) +9
I woke up feeling blessed that those nightmarish sweats left me alone last night. I slept a little longer too. I had my blood draw this morning so we were on pins and needles waiting for the results, and if my neutrophils were high enough then I could go for my...
February 25: 8+ Transplant
I had another night of drama with these night sweats. I think they are trying to UNHINGE me. If only I had a 'cap' to fire one in the butt of that 'night sweat commander'....! That familiar crashing headache, intense bladder pain and a larger than usual fatigue was...
February 24th: +7 Transplant
I had another night of unexpected sweats (gah, again!), constant disruptions, etc. I guess I have to get used to the idea them coming and going at whim. I realized that eight years ago today I was admitted to the ER and later hospitalized as a result of my MS. I...
Jenny when do you go?
Hi Janet, I leave Jan 30th.
Hi Jenny, i live in Germany and the neuros tell me I am too old for HSCT st 54 and my MS is too far gone.. The German MS society is also useless. So is My husband.
How did you manage to get to Mexico
All the best, Bernadette
Hi Bernadette, So sorry to hear of your situ. I think the first step is to contact Clinica Ruiz and begin the process to see if it’s something you want to pursue. It’s your choice and your life. When you decide, then next step is to figure out how to pay for it, and then physically get there. Here’s a link to an article I wrote on my decision making process. I hope you find relief. Kindest regards, Jenny
https://multiplesclerosis.net/living-with-ms/hsct-decision