HSCT Journals

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Coping During HSCT & Walking Video 4 Weeks Post

Coping During HSCT & Walking Video 4 Weeks Post

Many people find HSCT challenging for obvious reasons, but also because there are blocks of time when for some it can be unbearably boring and isolating. These periods occur when we are confined to our rooms waiting for our blood counts to increase. However, I was...

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Written by Jenny Angus

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February 8th

February 8th

Already I felt better seeing the sun out when I woke. I’m stoked it’s going to be heaps warmer in the days ahead too. My head felt clearer and the intense headache was way down from yesterday. AND I felt hungry. All good signs my body is recovering well from the...

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February 7th

February 7th

I woke up feeling OK, but soon after developed an intense headache. 8am meds today: Dexamethasone .5mg Pantoprazole 40mg Ondansetron 8mg I also started taking Tylenol and Ibuprofen first thing for my headache. Plus, I had this really uncomfortable queasiness. I took...

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Filgrastim Shots Begin:  February 6th

Filgrastim Shots Begin: February 6th

Wow, I feel a ton better this morning than yesterday and finally have some interest in food. I had my usual lemon water to start, along with a yummy coffee and a smoothie (vegetables/fruit/avocado). As the day wore on I better and better which made me realize how ill...

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4 Comments

  1. Janet B

    Jenny when do you go?

    Reply
    • Jenny Angus

      Hi Janet, I leave Jan 30th.

      Reply
  2. Bernadette

    Hi Jenny, i live in Germany and the neuros tell me I am too old for HSCT st 54 and my MS is too far gone.. The German MS society is also useless. So is My husband.
    How did you manage to get to Mexico
    All the best, Bernadette

    Reply
    • Jenny Angus

      Hi Bernadette, So sorry to hear of your situ. I think the first step is to contact Clinica Ruiz and begin the process to see if it’s something you want to pursue. It’s your choice and your life. When you decide, then next step is to figure out how to pay for it, and then physically get there. Here’s a link to an article I wrote on my decision making process. I hope you find relief. Kindest regards, Jenny

      https://multiplesclerosis.net/living-with-ms/hsct-decision

      Reply

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