HSCT Journals
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Walking Video 4 Months Post HSCT and MRI Update, etc…
This past week has been really tough for me. Most of it stemmed from the impassable walls I slam up against as a disabled person trying to do something to help myself, or for myself. We’ve all seen those videos where cars are being tested, sent at full speed crashing...
Written by Jenny Angus
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February 28 (Monday): Rituximab & Final Consult
Monday 28th (long one): My sleep was minorly better and thank goodness as today turned ended up being a BRUTAL one so having a little edge on energy was helpful. Everyone else is napping, sleeping tons, and I'm not...grrrr. My pick up for the Rituximab was at 1pm and...
February 27 (Sunday): +10 Transplant
I am still being ravaged by these night sweats, not as severe as before. I really wonder when they will stop?! I really need a good night sleep.....sigh. Today I need to organize myself and my belongings for the trip back to base camp. I'm the last person left in the...
February 26: (Saturday) +9
I woke up feeling blessed that those nightmarish sweats left me alone last night. I slept a little longer too. I had my blood draw this morning so we were on pins and needles waiting for the results, and if my neutrophils were high enough then I could go for my...
Jenny when do you go?
Hi Janet, I leave Jan 30th.
Hi Jenny, i live in Germany and the neuros tell me I am too old for HSCT st 54 and my MS is too far gone.. The German MS society is also useless. So is My husband.
How did you manage to get to Mexico
All the best, Bernadette
Hi Bernadette, So sorry to hear of your situ. I think the first step is to contact Clinica Ruiz and begin the process to see if it’s something you want to pursue. It’s your choice and your life. When you decide, then next step is to figure out how to pay for it, and then physically get there. Here’s a link to an article I wrote on my decision making process. I hope you find relief. Kindest regards, Jenny
https://multiplesclerosis.net/living-with-ms/hsct-decision