HSCT Journals
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Walking Video 5 Months Post HSCT + Update
This last month has been very, very challenging. I made a big change in effort to try and find a better way to live, and to further rehabilitation. I have experienced a few extreme (but short lived) drops in functionality, return of two bad symptoms, combined with all...
Written by Jenny Angus
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March 1st Part I of II: Travel Day & Goodbye to Dr. Alex
Tuesday the 1st: huge day! I was suffering immensely from the infusion yesterday. To sum it up, I had little sleep last night, crushing headache, unbearable discomfort/extreme distention in my abdomen of fluid retention, same bladder issues, heart palpitations, body...
February 28 (Monday): Rituximab & Final Consult
Monday 28th (long one): My sleep was minorly better and thank goodness as today turned ended up being a BRUTAL one so having a little edge on energy was helpful. Everyone else is napping, sleeping tons, and I'm not...grrrr. My pick up for the Rituximab was at 1pm and...
February 27 (Sunday): +10 Transplant
I am still being ravaged by these night sweats, not as severe as before. I really wonder when they will stop?! I really need a good night sleep.....sigh. Today I need to organize myself and my belongings for the trip back to base camp. I'm the last person left in the...
Jenny when do you go?
Hi Janet, I leave Jan 30th.
Hi Jenny, i live in Germany and the neuros tell me I am too old for HSCT st 54 and my MS is too far gone.. The German MS society is also useless. So is My husband.
How did you manage to get to Mexico
All the best, Bernadette
Hi Bernadette, So sorry to hear of your situ. I think the first step is to contact Clinica Ruiz and begin the process to see if it’s something you want to pursue. It’s your choice and your life. When you decide, then next step is to figure out how to pay for it, and then physically get there. Here’s a link to an article I wrote on my decision making process. I hope you find relief. Kindest regards, Jenny
https://multiplesclerosis.net/living-with-ms/hsct-decision