HSCT Journals
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My Hair Regrowth Science Project
For weeks I had no hair regrowth, unlike other HSCT patients. I started to wonder if my hair knew how ridiculously frigid it was outside and was hibernating. I had to remind myself that hair isn’t an animal, and I have no control over this stuff….. It was day +56...
Written by Jenny Angus
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February 16: Fourth Day Chemo
I felt I needed to preface this post as I am getting comments that some of my information may be too TMI for people. Let me be clear: this blog is for pwMS (people with MS) who are considering HSCT. I think what 'mainstreamers' don't realize is that these TMI things,...
February 15th (Part II): Chemo
Meds one hour before chemo: Oral Aprepitant 120mg (anti-emetic used for acute and delayed nausea and vomiting) When we arrived at chemo centre I learned my BP was 89/45. This is a much lower BP than my usual. I guess that explained the severe morning fatigue,...
February 15 (Part I): Apheresis
Even with these intense night sweats along with my bladder being too hyper-active forcing me to get up continuously, I slept better with a lot more drugs. Phew. I woke up though with a severe fatigue I hadn’t here experienced yet. For pwMS (people with MS) it’s that...
Jenny when do you go?
Hi Janet, I leave Jan 30th.
Hi Jenny, i live in Germany and the neuros tell me I am too old for HSCT st 54 and my MS is too far gone.. The German MS society is also useless. So is My husband.
How did you manage to get to Mexico
All the best, Bernadette
Hi Bernadette, So sorry to hear of your situ. I think the first step is to contact Clinica Ruiz and begin the process to see if it’s something you want to pursue. It’s your choice and your life. When you decide, then next step is to figure out how to pay for it, and then physically get there. Here’s a link to an article I wrote on my decision making process. I hope you find relief. Kindest regards, Jenny
https://multiplesclerosis.net/living-with-ms/hsct-decision