HSCT Journals
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Walking Video Three Months Post HSCT
I have been told to not expect any improvement from HSCT, and the prognosis is to simply stabilize disease degeneration. I have been reminded to be careful of expecting any sustained improvements as they may disappear in the future, and may/may not come back. Well so...
Written by Jenny Angus
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More From This Category
February 17th: Stem Cell Transplant (New Birthday)
What an awful night. The bladder urgency was like a rocket ship launching me out of bed. I had seconds to make it to the commode beside me. Then I’d crash back to bed, but not before switching out my drenched PJ’s from the intense night sweats. I'm developing a...
February 16: Fourth Day Chemo
I felt I needed to preface this post as I am getting comments that some of my information may be too TMI for people. Let me be clear: this blog is for pwMS (people with MS) who are considering HSCT. I think what 'mainstreamers' don't realize is that these TMI things,...
February 15th (Part II): Chemo
Meds one hour before chemo: Oral Aprepitant 120mg (anti-emetic used for acute and delayed nausea and vomiting) When we arrived at chemo centre I learned my BP was 89/45. This is a much lower BP than my usual. I guess that explained the severe morning fatigue,...
Jenny when do you go?
Hi Janet, I leave Jan 30th.
Hi Jenny, i live in Germany and the neuros tell me I am too old for HSCT st 54 and my MS is too far gone.. The German MS society is also useless. So is My husband.
How did you manage to get to Mexico
All the best, Bernadette
Hi Bernadette, So sorry to hear of your situ. I think the first step is to contact Clinica Ruiz and begin the process to see if it’s something you want to pursue. It’s your choice and your life. When you decide, then next step is to figure out how to pay for it, and then physically get there. Here’s a link to an article I wrote on my decision making process. I hope you find relief. Kindest regards, Jenny
https://multiplesclerosis.net/living-with-ms/hsct-decision